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AAC-RERC Research Project R6
www.aac-rerc.com

R6: Advanced ACETS (Augmentative Communication & Employment Technology Supports)

Lead Institution: Temple University
PURPOSE
The overall purpose of this 5-year project is to expand ACES (Augmentative Communication and Empowerment Supports) to focus on increasing employment opportunities for selected graduates of ACES and other individuals who use augmented communication by developing, implementing, evaluating, replicating, and disseminating the results of a new program called ACETS - Augmentative Communication Employment Training and Supports.
TARGET POPULATION
For years 1-3, recruitment was limited to individuals (ages 18 - 64) with significant speech disabilities who can use their communication devices for face-to-face communication, can interface their communication devices with computers, are familiar with the Internet, and have a desire to work in the telecommunications field. For year 4, the participants included four students high school students (ages 16-17) who use AAC.
PROBLEM

The employment rate of people with disabilities continues to be grim. More than two thirds of men and women with disabilities (ages 16 - 64) are unemployed despite their overwhelming desire to work, the passage of the "tech act" in 1988 and the Americans with Disabilities Act in 1990, improvements in employer attitudes since the passage of the ADA, and the lowest unemployment rates in history. There are many barriers to the employment of adults who use AAC including poor preparation for the world of work, limited employment-related vocabulary preprogrammed into their communication devices, financial disincentives to work, and limited opportunities for first job experiences as young adults.

Technology has enabled many individuals with significant speech disabilities to "gain a voice." More and more individuals who rely on augmentative communication are comfortable and skillful with computer technology. They routinely use dedicated talking computers (augmentative communication devices), and use personal computers for word processing and to access the Internet and the World Wide Web. Several of the 300 subscribers to ACOLUG have their own web pages.

The potential of technology for supporting the communication needs of people with significant communication disabilities has already been demonstrated. This five-year project hopes to demonstrate the potential of technology as one employment solution for selected individuals who use AAC.

PROGRESS

ACETS 1999 included six participants. After completion of the program, each participant was contacted bi-weekly by either a face-to-face meeting, phone call, or e-mail. Each participant was required to submit monthly timesheets to track their progress. A final close out session and goal planning session was held, with 5 of the 6 participants attending. They participated in a focus group discussion and individual planning session, and completed a post program survey. Follow up of ACETS 1999 participants included technical assistance meetings, attending planning meeting with OVR, arranging two technical assistance daylong workshops, and collecting final data. One participant of ACETS 1999 secured two part-time positions, one as a bookkeeper and one providing AAC training to a young man who uses an AAC device. Additionally, one ACETS 1999 participant has started his own business.

Two people attended ACETS 2000, which was four days longer than ACETS 1999 to provide the opportunity for additional technical training. Follow up activities included technical assistance visits, visits to train facilitators, and attending planning meetings with the participant's OVR counselors. One participant secured halftime employment as a trainer at Philadelphia's Center for Independent living, which later became a full-time position. ACETS has provided numerous technical assistance visits to ensure that the proper accommodations are in place for her to complete her job responsibilities.

A draft curriculum and a research manuscript have emerged from ACETS 1999 & 2000. Numerous papers were presented at national and international conferences, a white paper on AAC and Web access was disseminated via the web; and standards for web access and AAC was presented to the W3C consortium. With the sudden death of Dr. Leonard Kasday, Engineer, a graduate assistantship in his memory to promote Web accessibility has been established.

In addition to ACETS, several related projects have emerged.

ACETS Employment Vocabulary - A study was conducted that looked at a variety of different vocabulary systems to assess how well they meet the vocabulary requirements of employment, as well as other topics critical of adult vocabulary. The ACETS Employment Vocabulary was designed to provide quick access to a wide range of words that will be useful in finding and maintaining employment. It was also designed to bring more attention to employment of augmented communicators, those who they communicate with, and anyone who either manufactures or programs AAC devices. The ACETS Employment vocabulary is currently available in several downloadable formats with more to follow soon. Please visit the ACETS Employment Vocabulary web page for more information.

SSIBenny - SSIBenny.com is an online disabilities benefit calculator. Benny is a joint project of the Institute on Disabilities and Matrix Research Institute with funding from the RERC on Communication Enhancement, NIDDR, and The Pew Charitable Trusts. Benny was developed to be a simple and user-friendly tool for individuals to figure out how earning money from employment will impact their disability benefits. SSI Benny currently calculates benefits for the State of Pennsylvania, however we plan to extend its capabilities to more states soon.

Job-Related Social Networks - From the work of ACETS emerged the need to study another aspect of the low employment of people who use AAC. There is no research on the job-related social networks of people who use AAC. However, there is much research for typical populations and other marginalized populations to suggest that human capital (e.g., skills) is not sufficient for employment. Social capital (e.g., rich, diverse social networks) is critical. The research that is being conducted on job-related social networks is in two phases. Phase I (near completion) looks at the scope, depth, and effectiveness of social networks among 40 persons who use AAC (some employed, some not; some college educated, some not: and a small sample of non-disabled counterparts). The role that technology plays in these job-related social networks is also being studied. Phase II will investigate the roles of human capital, especially related to technology, and social capital needed for employment from an employer's perspective. Results from these two studies should inform vocational rehabilitation professionals, AAC consumers, and AAC manufacturers about skills and technology needed to improve employment outcomes for people who use AAC.

KEY FINDINGS
Research on ACETS 1999 and 2000 indicated that participants perceived increases in 21 job-related skill areas, particularly in technology and computer-related skills. Perception of the importance of barriers related to employment also decreased for ACETS participants. All participants felt ACETS was a worthwhile experience and 4 of 8 participants have gained some level of part-time or full-time employment. No data has been analyzed yet for ACETS 2001.
PARTNERS

(the links below will open in a new window)

FOR MORE INFORMATION
Diane Nelson Bryen, Ph.D.,(Principal Investigator): dianeb@astro.ocis.temple.edu